Last updated: 3 August 2026

South Asian Women in Rare shares personal stories, experiences, and conversations about living with or supporting someone with a rare disease. This content is for informational and community purposes only.

This is not medical advice

Nothing on this site — podcast episodes, blog posts, guest stories, or any other content — is medical advice, diagnosis, or treatment. It is not a substitute for professional care.

  • We are not doctors, and most guests are not speaking as medical professionals.
  • Every rare disease and every person’s experience is different — what worked for one guest may not be appropriate for you.
  • Never delay seeking medical advice, disregard professional guidance, or start/stop any treatment because of something you heard or read here.

In an emergency

If you are experiencing a medical emergency, contact your local emergency services immediately, or go to your nearest emergency room.

Talk to a professional

For any health concern, please consult a qualified healthcare provider familiar with your situation and history.

Questions about this disclaimer

Email southasianwomeninrare@gmail.com.