
How to Advocate for Yourself in Medical Settings
Self-advocacy is a skill. And for women, particularly women of colour, it's often a necessity. Here are strategies that have worked for our community.
South Asian Women in Rare
South Asian Women in Rare
Research consistently shows that women’s pain and symptoms are more likely to be dismissed or minimised in medical settings. For South Asian women, race compounds this. Advocacy isn’t optional — it’s a skill worth building deliberately.
Keep your own records
Don’t rely solely on your healthcare team to maintain your story. Keep a personal health journal that includes:
- Symptom onset, duration, and triggers
- Medications and their effects
- Questions you’ve asked and answers you’ve received
- Names and dates of every appointment
Prepare for appointments
Use the SBAR structure (Situation, Background, Assessment, Request) to frame your concerns clearly. Doctors respond better to organised, specific presentations. Practice what you want to say beforehand.
Don’t accept “it’s probably anxiety”
Rare disease symptoms — fatigue, pain, neurological changes — are routinely attributed to anxiety in women. If a serious organic cause hasn’t been ruled out, you have every right to ask for further investigation.
Build your care team deliberately
Seek clinicians who listen. Bedside manner matters, especially when your condition is complex and long-term. A doctor who dismisses you is not the right doctor.
Find your people
Other patients are often the best source of specialist recommendations, treatment insights, and just plain solidarity. Patient forums, Facebook groups, and podcasts like ours exist because that network has real value.
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